Date: Oct. 2, 2008
Contact: Sandy Dees, 455-8466 or 303-4115
Donors moved by faith and personal
experience with autism
GHS Children’s Hospital launches
comprehensive autism program
with
$2 million gift
from North American Rescue
GREENVILLE, SC -- Greenville Hospital
System University Medical Center (GHS) Children’s Hospital will
launch a comprehensive autism program thanks to a $2 million gift from
Greer-based North American Rescue. The innovative initiative will feature
early diagnosis, treatment, whole-family support, research and community
outreach.
The new program, which will include at
least seven clinicians, will rival any in the nation, said Michael Riordan,
GHS President and CEO. The $2 million gift is one of the largest ever
received by GHS. He thanked North American Rescue CEO and founder Bob
Castellani and wife, Dr. Lisa Castellani, for their extraordinary gift
and friendship.
“Bob and Lisa have lived this struggle
with their own autistic son and knew, first hand, the overwhelming needs
that exist in our community,” he said. “This program will literally
be a lifeline for parents struggling to help their children – not
only here at GHS but in the broader community.”
More than 3,500 children with developmental-behavioral
issues are treated each year at Children’s Hospital; last year, 25
percent were diagnosed with autism or related disorders such as Asperger
syndrome. The number of children being diagnosed with autism is on track
to be even greater for this year.
One of the immediate benefits of the
program is to fast-track children ages 3 and under into an initial consultation
in as little as three weeks. In the past, these appointments could take
as long as three to six months to schedule because of high demand.
“It is vital that children experiencing
problems related to autism be identified early and begin a comprehensive
treatment program,” said Dr. Desmond Kelly, medical director of GHS’
nationally ranked Division of Developmental-Behavioral Pediatrics. “Early
intervention can make all the difference in the world.”
Highlights of the new program include
the following:
- Early diagnosis and treatment
- Periodic re-evaluation to ensure patients receive appropriate services as they mature and transition from one system of services to the next
- “Road maps” to inform families of options for evaluations, services and support
- Whole-family support by clinical service coordinators to guide families through the process and connect them with appropriate state and local services
- Extensive community outreach programs
- Additional training for physicians, healthcare and childcare professionals
- Research to study and refine the program and to work on next-generation therapies
The program, based at GHS’ Patewood
Medical Campus, is already in the process of hiring additional clinicians.
It will build on the groundwork laid by GHS’ Donald A. Gardner Family
Center for Developing Minds, a developmental-behavioral pediatric program
that began with a half-million dollar gift in 2005.
For the Castellanis, their decision was
based on faith and on their own experience with an autistic child. The
Castellanis also have a 7-year-old daughter, Rachel, who they described
as a “wonderful big sister.”
Son Cole, almost 5, was adopted at age
15 months and diagnosed with autism at around 3. Dr. Castellani, a pediatrician,
left her practice in order to ensure that Cole had the intense intervention
he needed in order to achieve his full potential.
“We saw what great strides Cole was
making because of his behavioral therapy – and knew that not every
family could provide that kind of intensive therapy for their child,”
said Dr. Castellani. “Cole had the advantage of having a pediatrician
as a mother and working with an in-home therapist for six-to-eight hours
a day. How many families have those kinds of resources? We believe that
God brought Cole to us for a reason, and that there is a larger purpose
to the whole situation. That purpose was to do something about autism,
something greater than this one child.”
In addition to a complement of pediatricians,
psychologists, speech and occupational therapists and family support
specialists, the center will also feature an outreach component headed
by Dr. Castellani herself. That position, however, will not be funded
by the grant but as a separate expense by North American Rescue.
Dr. Castellani’s own experience with
autism will resonate with families in similar situations. “With this
condition, parents are looking at anything and everything for hope and
knowledge. It can get really confusing,” she said. “Depending on
where you are on the path, you may not hear what a medical professional
has to say; you might be more apt to listen to the voice of someone
who stands in both worlds.”
Brookwood Church, where the Castellanis
attend, is also a partner in this program. As part of its community
care outreach, the church identified a rising rate of autism as a critical
need in the community. Complicating the autism diagnosis is the fact
that divorce occurs in a high percentage of families with a special-needs
child.
“The church was ideally positioned
to strengthen families while providing services for autistic children,”
said Dr. Castellani. Brookwood is already involved in ministry to special-needs
persons on Sunday mornings and also sponsors family support and mentorship
ministries.
The Brookwood program will provide an
opportunity to conduct community-based research searching for the best
methods to aid autistic children in the most cost-effective, wide-spread
way possible. The models will be developed by GHS staff, Dr. Castellani
and a Brookwood program manager whose salary will be funded by North
American Rescue.
Brookwood senior pastor Perry Duggar
said, “We want to develop a model with multiple components that churches
can then modify and implement. If that happens, churches will be able
to provide significant help to struggling families.”
Bob Castellani, a retired U.S. Air Force
para-rescueman whose company designs and manufactures tactical medical
and rescue equipment, credited businessman/philanthropist Bobby Dobson
with their philanthropic decision. “Bobby and Beth Dobson are a great
inspiration to us with their Elder Care ministry,” said Castellani.
Even with recent downturns in the economy,
the Castellanis said they never questioned the decision.
“Regardless of economic conditions,
we need to serve our community,” said Castellani. “It can be agreed
that during the economic downturns, philanthropy is needed more than
ever. Our lives have been blessed; we want to give back. It is simply
no more than one neighbor loving another.”
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